Lymphedema is a condition in which a part of the body’s lymphatic system is weakened, damaged or missing. Due to the lymph nodes’ inability to properly drain the fluid from the affected part of the body, the limb experiences severe swelling. There are two types: primary, which is genetic, and secondary, which occurs due to accidents or complications from surgery (breast cancer patients who undergo a mastectomy are at risk of developing secondary lymphedema in their arms). I was born with primary lymphedema in my right foot and leg. Some people with primary lymphedema develop it later in life, but nope, I popped out of the womb with it. So for me, it has been a lifelong issue. I have been lucky so far to not have any infections in my right leg, as the skin on a limb affected by lymphedema is supposedly at high-risk for developing infections. When I was younger, I just kind of treated my leg as just some quirk about my body I couldn’t help, and at least on an emotional level it still is, but now I try to be careful about wounds. I don’t shave my legs very often anymore, since I was having issues with ingrown hairs, and after reading a few recommendations, I very recently bought the Schick Intuition razor along with a ton of shave gel (sensitive skin formula too) for the occasions when I do need to shave. I am not a big fan of hairy legs, but I’d rather deal with that than a nasty infected wound. However, the Intuition razor shaves rather nicely, so perhaps I will be able to start shaving more often again. Despite the lack of infections and the attempts to avoid wounds, my right foot is a bit of a hot mess, enough so that I never want to show my feet anymore. Due to a lifetime of being swollen and the difficulties of finding comfortably fitting shoes for an awkward foot, I frequently experience blisters across the top of my feet just under the toes. This has left that area severely callused and it has become enough of an issue for me that I finally scheduled an appointment with a podiatrist for Tuesday.
I use compression bandaging on my leg to try to keep the swelling down. Despite my doctor’s recommendation that I do not stand for long periods of time, I work at a job that does not allow me such a luxury, and the compression wraps help to reduce the amount of swelling that eight hours of standing can bring about. Sometimes, the wraps come loose and I find a trail of bandaging following me in a fashion similar to toilet paper stuck to one’s shoe. This frequently happens during a day at the renaissance faire. I do find that when I move around a lot that I at least do not have much swelling through my knee, whereas the standing in one place monotony of my job does cause a bit of misery.
Guess what? The swelling affects the numbers on the scale as well! If I let the swelling go, I can gain well over ten pounds in excess lymphatic fluid in my leg. So the limb is heavier, which makes me feel heavier, and it throws off my balance a bit having one limb that weighs more than the other. Since I am constantly standing, my weight does yo-yo a bit during the course of the week in-between weigh-ins, even with wrappings. I tend to stay off my feet when I have a day off and nowhere to go, save for working out, but as stated previously, movement does seem to help the swelling. Right now, I am enjoying a four day weekend. I can assure you that my leg will be fairly small when I go into work the next time.
TMI: Getting rid of extra “water weight” makes me need to pee. A lot. All the time. It’s kind of embarrassing, but it’s not really something I am able to help. I just hope it doesn’t end up affecting my bladder or kidneys in the long run. I will have to ask my doctor if I should be concerned the next time I see her. Until then, I just try to plan ahead and anticipate so that it doesn’t mess me up too much.
I do hope that getting myself down to a healthy weight will help the symptoms of lymphedema. I will always have lymphedema, I will never have a sexy pair of legs, and I can live with that because it is a part of my life. However, if I could find cute shoes or some winter boots that will fit and not cause blisters, that would be pretty sweet.
So that is my life with lymphedema. To give an update on the rest of my progress, my last weigh-in puts me down about 33 pounds, and that was with a moderately swollen leg. My job adopted a new dress code for the New Year, and I was able to buy my work pants a size down. I am even starting to jog a little bit, which excites me to no end. I am seeing and feeling the changes. My stamina is better. My posture is better. My confidence is better.
I feel better, and that is something to smile about.
TO BE CONTINUED…